relation: http://repository.upi.edu/141066/ title: SELF-CARE PADA ANAK DENGAN THALASSEMIA MAYOR USIA ADOLESCENT creator: Afro Salma Fauziyah, - creator: Septian Andriyani, - subject: L Education (General) subject: RJ Pediatrics subject: RT Nursing description: ABSTRAK SELF-CARE PADA ANAK DENGAN THALASSEMIA MAYOR USIA ADOLESCENT Afro Salma Fauziyah NIM 2411461 E-mail : afro@upi.edu Pendahuluan: Thalassemia merupakan kelainan genetik yang memengaruhi produksi hemoglobin, sehingga menyebabkan anemia kronis akibat penghancuran sel darah merah yang tidak efektif. Remaja dengan thalassemia mayor memerlukan transfusi darah rutin dan berisiko mengalami gangguan psikologis yang berdampak pada kualitas hidup. Penelitian ini bertujuan untuk mengidentifikasi dan mendeskripsikan penatalaksanaan self-care pada remaja dengan thalassemia mayor serta dampaknya terhadap kualitas hidup. Metode: Penelitian ini menggunakan desain deskriptif eksploratif dengan pendekatan single case study. Data dikumpulkan melalui pemeriksaan fisik dan wawancara mendalam, kemudian dianalisis secara tematik untuk mengungkapkan pola self-care yang diterapkan oleh partisipan. Hasil: Hasil wawancara eksploratif menunjukkan bahwa partisipan secara konsisten menjalankan self-care yang meliputi pengelolaan rutinitas harian seperti bersekolah, melakukan aktivitas fisik dan hobi, kepatuhan terhadap konsumsi obat, dan keteraturan dalam menjalani transfusi darah sebanyak dua kali sepekan. Diskusi: Optimalisasi pelaksanaan self-care pada remaja dengan thalassemia mayor memerlukan dukungan biopsikososial dari keluarga dan teman sebaya. Dukungan tersebut berperan penting dalam meningkatkan kualitas hidup remaja dengan thalassemia mayor meskipun dihadapkan pada berbagai hambatan dan tantangan. Simpulan: Penatalaksanaan self-care yang konsisten dan dukungan biopsikososial memiliki peran penting dalam meningkatkan kualitas hidup remaja dengan thalassemia mayor. Kata Kunci: Thalassemia Mayor, Self-care, Adolescent ABSTRACT SELF-CARE IN CHILDREN WITH THALASSEMIA MAJOR OF ADOLESCENT Afro Salma Fauziyah NIM 2411461 E-mail : afro@upi.edu Introduction: Thalassemia is a genetic disorder that affects hemoglobin production, leading to chronic anemia due to ineffective destruction of red blood cells. Adolescents with thalassemia major require regular blood transfusions and are at risk of psychological disorders that impact quality of life. This study aims to identify and describe self-care management in adolescents with thalassemia major and its impact on quality of life. Methods: This study used an exploratory descriptive design with a single case study approach. Data were collected through physical examination and in-depth interviews, then analyzed thematically to reveal the self-care patterns applied by participants. Results: The results of exploratory interviews showed that participants consistently practiced self-care, which included managing daily routines such as attending school, doing physical activities and hobbies, adherence to drug consumption, and regularity in undergoing blood transfusions twice a week. Discussion: Optimizing the implementation of self-care in adolescents with thalassemia major requires biopsychosocial support from family and peers. This support plays an important role in improving the quality of life of adolescents with thalassemia major despite facing various obstacles and challenges. Conclusion: Consistent self-care management and biopsychosocial support have an important role in improving the quality of life of adolescents with thalassemia major. Keywords: Thalassemia Major, Self-care, Adolescent date: 2025-09-27 type: Thesis type: NonPeerReviewed format: text language: id identifier: http://repository.upi.edu/141066/1/P_NERS_2411461_Title.pdf format: text language: id identifier: http://repository.upi.edu/141066/2/P_NERS_2411461_Chapter%201.pdf format: text language: id identifier: http://repository.upi.edu/141066/3/P_NERS_2411461_Chapter%202.pdf format: text language: id identifier: http://repository.upi.edu/141066/4/P_NERS_2411461_Chapter%203.pdf format: text language: id identifier: http://repository.upi.edu/141066/5/P_NERS_2411461_Chapter%204.pdf format: text language: id identifier: http://repository.upi.edu/141066/6/P_NERS_2411461_Chapter%205.pdf format: text language: id identifier: http://repository.upi.edu/141066/7/P_NERS_2411461_Appendix.pdf identifier: Afro Salma Fauziyah, - and Septian Andriyani, - (2025) SELF-CARE PADA ANAK DENGAN THALASSEMIA MAYOR USIA ADOLESCENT. S1 thesis, Universitas Pendidikan Indonesia. relation: https://repository.upi.edu/